Treating Infantile Spasms
If children are thought to have IS, they may be sent to an epilepsy center to be diagnosed. Once infantile spasms is confirmed, treatment should be started as soon as possible. The American Academy of Neurology and Child Neurology Society specify that successful treatment must stop both spasms and hypsarrhythmia.
Acthar is one clinically proven therapy that has been shown to stop spasms and hypsarrhythmia.
What is Acthar?
Acthar is a prescription medication containing the hormone adrenocorticotropin ("a-DRE-no-cor-tico-tro-pin") that has been used for over 50 years to treat children with infantile spasms. Acthar may work by both helping the body produce natural hormones and by having a direct effect on the brain. It is designed to slowly release the medication into the body after it is injected.
How will Acthar help?
Approved by the FDA, Acthar was proven to stop spasms and hypsarrhythmia. In one clinical study, 87% of children had no spasms and no hypsarrhythmia by week 2. Some parents reported that their children’s spasms disappeared as early as day 1 following the start of treatment. On average, children responded to treatment at day 3.
Acthar is proven to:
- Stop spasms
- Stop hypsarrhythmia
How is Acthar given?
Acthar is given by an intramuscular injection (into the muscle). Your doctor or nurse will provide detailed instructions about how and when to give Acthar to your child. In addition, Questcor has an injection guide you can download and a step-by-step injection video to guide you through the injection.
Contact your doctor or nurse if you have any questions about using Acthar.
How do I get Acthar for my child?
Questcor, the makers of Acthar, wants to make sure that all children who need Acthar can get it. We know that working with your insurance company and paying for medication can be difficult at times, so Questcor started the Acthar Support & Access Program (A.S.A.P.) to help. A.S.A.P helps make sure your child can get Acthar quickly, answers insurance questions, and offers assistance for uninsured or underinsured patients. Your doctor or nurse will work directly with A.S.A.P. to help you get started with Acthar. A.S.A.P. works to make sure cost is not a problem:
- 95% of patients have had Acthar paid for by their insurance company
- The other 5% have received free Acthar through Questcor’s Patient Assistance Program. In fact, Questcor has provided $124.4 million in free Acthar to needy patients and children’s hospitals since Sep 2007
- On average, most patient copayments have been less than $20; if you are unable to afford your copay, no matter how big or small, help is also available through our copay assistance program for qualified patients
Because Acthar is only available through a Specialty Pharmacy and not your local pharmacy, A.S.A.P coordinates the shipment of Acthar to your home (or another location chosen by you and your doctor) in about 2 to 3 days. The Specialty Pharmacy will contact you to schedule this shipment of Acthar, so please provide your doctor with the best telephone number at which to reach you. If you miss the call from the Specialty Pharmacy, be sure to call back as soon as you can. If you have any questions about the delivery of Acthar, pick up the phone and call A.S.A.P at 1-888-435-2284.
To learn more about A.S.A.P.:
Call A.S.A.P. at 1-888-435-2284.
Monday-Friday, 8:00 am – 8:00 pm ET